Systemic sclerosis (SSc) is a disfiguring, disabling and potentially fatal rare disease that causes scarring of the skin (scleroderma), lungs (SSc-ILD) and other organs. Worldwide it is estimated that over two million people have systemic sclerosis and it affects mostly women in the prime of their lives, between 25 and 55 years of age. Systemic sclerosis is a complex rare disease with a variable course. It presents with a range of symptoms involving several different organs; this means it is difficult to recognize and this can delay early and accurate diagnosis.
Latest Articles on Scleroderma
Scleroderma Life Hacks
Video series featuring people living with scleroderma using everyday items in different ways to help them manage their symptoms.
All eyes on patients
EURORDIS has selected Boehringer Ingelheim for the first time as recipient of the prestigious Black Pearl Award 2020
The little things
In 2009 Anna was diagnosed with scleroderma. For her, however, the disease is no reason to give up. On the contrary.
Systemic Sclerosis ILD Infographic
Facts and information about Systemic Sclerosis Interstitial Lung Disease
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November 05, 2020
New Analysis Supports Long-Term Treatment with nintedanib in SSc-ILD Patients1
August 12, 2020